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Ona će tako moći da na vreme dobije lek za spinalnu mišićnu atrofiju tip 1 od koje je obolela.

Spinalna mišićna atrofija je toliko progresivno oboljenje da može imati smrtni ishod do druge godine života.

Lek “zolgensma” mora da se primi pre nego što dete napuni šest meseci, odnosno dostigne težinu od 12 kilograma.

foto screenshot Instagram

Taj dan je subota, 13.novembar, a u prethodna dva dana čitava Srbija je reagovala na potresan apel devojčicine majke i novac za najskuplji lek na planeti je prikupljen.

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